Finally, Z seems to be resting. It took a while to get her sedative drips going and configured for her needs. Her nurse told me that Zayne is either all in or all out. Since she still has the breathing tube and is not at all calm when semi-awake, she has a little more sedation to keep her asleep.
Before I slept for a few hours, I saw that Zayne was talking. Unfortunately, I am not proficient at lip reading. However, the charge nurse told me she said “I want water”. If she wakes again, I can offer her some water on a rag.
All night long, there are alarms going off. Most of the time, it was just to let the nurse know to change out the medication. There was even an X-ray at 5 am. She had her eyes briefly open for the x-ray, but looked terrified to me. I’m happy to see her sleeping at 6 am.
She must be pretty hungry, because I realized that she didn’t have any Pediasure at camp, and had only nibbled on food when I picked her up at lunch time. That would explain why she seemed very desparate for her Pediasure drink prior to transplant.
We’ll see what the day brings. I would like for the breathing tube to come out, but if she still needs it for her high pressure, then I want her to stay sedated. It is unnerving to watch her pulling on her arm restraints, silently screaming, and seeing the fear in her eyes. I’m told that she won’t remember any of this (hopefully, it will not haunt her dreams). I won’t forget.
Sending you strength and love. Hang in there.
Ohhh mama, I just cannot even fathom this. You are in my thoughts and intentions and I and my children are sending Zayne and you so very much love.
Randy we are with you in love and spirit…this is a miracle in motion albeit slow motion for you as you bear each moment with her. She sees you when she opens her eyes…that is huge for her…I seem to remember a very happy preschooler radiate even more when her mom came to pick her up at day’s end!
Randy and Zayne–
We are all hoping and praying for you to have a speedy recovery.
Thinking of you guys,and hoping for a speedy recovery.