No News Was Good News, Until It Isn’t

Well, I had been planning to post an update on how well Zayne has been doing. Riding Horses, doing Taekwondo, riding her bike, playing with her cat, exploring outside… But, I was too busy to post anything. At 1:30 am, I find I cannot sleep in the Cardiac ICU.

We are back after nearly 5 years after leaving this ICU. I couldn’t get Zayne to play outside – she was tired and sleeping more than normal. She was eating a lot less than normal. Hands and feet seemed cold and purplish, but she wouldn’t put on pants or a long sleeve shirt, and she was getting winded walking up the stairs in our house. Memories from pre-tranplant time started to flood my mind, but she was probably just sick. We have been so careful to stay out of stores and protect ourselves during the Covid Pandemic.

On Monday, April 27, we reluctantly went to the ER after conferring with a transplant nurse. Going to the hospital was not where we wanted to go during these scary times. My fears we confirmed – Zayne is in rejection and her heart is failing.

There is fluid around her heart and lungs. No wonder I couldn’t get her to eat or drink much. Her heart isn’t pumping well. Tomorrow (Tuesday), we’ll get test results back and learn what type of rejection. Heart cath and biopsy is scheduled for around 11 am.

Stay tuned.

ER – after the Covid test. Yes, they stick the swab up your nose into your brain.
—————————————————————————————————————————

Pre-Rejection Photos

Old Playground
We made matza. They made for good frisbees. Next time, roll really thin.

4 Comments

Filed under Rejection

4 Responses to No News Was Good News, Until It Isn’t

  1. Stacy Dorian

    Unreal…stay strong sister

  2. TAMMY LEWARK

    OMG! I am sooo sorry to see this post! My Good thoughts & prayers are with you both! I know we have not kept in touch lately but please let me know if there is anything I can do to help! Stay STRONG & HEALTHY! BIG HUGS TO YOU & ZAYNE! 🙂 🙂

  3. Elizabeth

    We’re here for you!

  4. Bleu Rae

    Oh mama, I’m so sorry you are facing this. Sending massive fierce love ?