This was a tough day for Zayne, but I just got a phone call that her BNP is down to 1,200 from Monday’s result of just over 2,000. This is great news (her heart is on the mend), and her donor specific anti-body results will be available on Friday. In other good news, her echo (heart ultrasound) looked better than Monday’s echo.
The morning started in lab for a blood draw. Three pokes later, we were able to leave. This time, I didn’t hesitate to tell the tech to “pull out” when she missed the vein (I’m learning), but she still managed to hurt Zayne. The next vein poke wasn’t very bloodfull, but filled the required tubes. A finger poke finished off the remaining vials.
Galaxy, MD came to help Zayne with a couple of vaccinations – Meningococcal B and ACWY vaccinations that she needs because of the eculizumab (complement inhibitor) treatment. Two nurses came in to give her the shots at the same time. She didn’t feel one of them, because the other hurt so much more.
Side effects from the vaccinations hit, and Zayne feels badly: fever, chills, tremors, aches, fatigue, etc.
I made Zayne cry when I told her she would need a booster next month for one vaccination, and the other vaccination would need a booster in 3 months.
The day before the latest hospital visit was more fun
After a run through the sprinklers 
A girl and her monster truck. LOL doll going for a ride.
Get a few dog treats for Zayne to feed Galaxy – may be a bit of distraction during the ‘pokes’. My heart goes out to both of you! Better days wished for you very soon!