We are chucking some meds and are down to only 7. Once stabilized, Zayne will only have 3 daily medications.
Thursday’s transplant clinic appointment shows no improvement since last week, but at least we didn’t see a decline. I was told that recovery could take a while. Also, blood work has stayed the same – once again, at least the bad numbers did not increase.
Zayne is already stressing over her heart catherization and next COVID test on June 8. This will be her 3rd COVID test (this test will be a 10 second swab far up her nose).
After the heart cath, she will have a 6 hr (maybe 4 hr?) Intravenous Immunoglobulin Therapy (IVIg) infusion to add antibodies to her system that were removed from other treatments. What is the source of the IVIg antibodies? The antibodies come from purified blood plasma donations (from people).
Checking out a spare tube of blood from last week’s ER visit 
Caterpillars 
Playing in the rain 
Reading 
Checking out animal prints 
Taking apart patio chair to replace fabric 
After Mommy’s hard work (and lots of murmured curses) to replace the sling, Zayne is putting the chair back together
Good old-fashioned activities! FX for continued recovery.