We baked a cake for Zayne’s Pill Party. We had a party to celebrate Zayne being able to swallow pills (the white circles represent pills, and the 0 candle means no more liquids). A huge achievement! Once she is only on regular meds, I can stock pile a small supply. Living month to month with liquids that expire and cannot be stockpiled is scary. The world of travel is starting to open up, if we don’t consider the pandemic, eating issues, and rejection.
Zayne had more energy on Sunday, and today’s transplant clinic had some good news – heart rate is down to the 120s, blood pressure was the lowest level in a month, gallop was not easy to hear, and EKG looked better. Echo still doesn’t show improvement, but I hope it is just lagging behind.
Zayne doesn’t feel like eating much, which is worrisome considering how much she ate prior to rejection.
Zayne is not looking foward to June 8 – COVID, Cath, and IVIG