A few days ago, I was asked “Does the tooth fairy really exists?” I was surprised, because I didn’t think that she really believed in the tooth fairy. I didn’t want to lie or to dash another bit of her childhood, so I told her that people imagine that the tooth fairy exists. Zayne told me that she thinks that I leave her the money, and that the tooth fairy writes her the notes and certificates.
Next week is IVIG #4 out of 6. We’ll have a full day at the hospital. Last week, we had a scare, and I thought Zayne might get admitted. The echo tech raised concerns at her echo which resulted in an extra round of blood work and spending a few more hours in the hospital.
Lasix was added back into the med regime to see if it could lead to any improvements. Zayne’s heart has not really improved since we were discharged from the hosptial. One of her immune meds is measuring too low in her body, so we had to add another pill to increase the dosage by .25 mg.