Yesterday consisted of 3 different walks around the CPCU. We had to drag around an IV pole since Zayne needed 3 infusions: Potassium, Magnesium, and intravenous immunoglobulin (IVIG). IVIG is pooled antibodies from other people that helps to rebuild her immune system.
Today, an IV was removed, and Zayne has a single PICC line left. She was free all day and had a good walk about. Some time in the teen room to play Mario Kart where her support team brought a wheel chair. Zayne felt great, and I (alone without medical staff) took her down a flight of stairs and outside to walk on terra firma.
Later, Zayne walked up to the 11th floor from the 9th floor, and then down 11 flights to the 1st floor. Her heart feels great but her skinny legs are tired.
Tomorrow Zayne will have an MRI of her brain to check function after being on ECMO. She also has an appointment to pick up her Bag of Fun – she is looking forward to seeing what she gets. When I spoke with the coordinator last week, I didn’t think she would be able to walk to the office to pick up the bag herself. Zayne has come a really long way in a week. It was just last week where she had a heart transplant followed by emergency surgery to install ECMO, another open heart surgery last Tuesday to remove the ECMO cannulas, and her breathing tube was removed last Wednesday.
Love, love the “Feeling Sunshine” pic. Feeling the “Scar” pic. ❤
Glad Z is up and about, and out!!!!