Zayne finally got permission to go to an outdoor pool. The day was freezing and I was wearing a fleece jacket and sitting out of the rain. The lifeguards were wearing hoodies, and Zayne was the only kid in the pool. We’ll go back on a warmer day (during the week) as soon as she is allowed. Yesterday, Zayne had an urgent heart cath to check for possible rejection. She had dropped a bunch of meds (5 of them), but we are adding two back. She will be on a very low dose steroid until she can start on a new (new to Zayne) immunosuppression drug in two months. Since the dose is low, she doesn’t need the gross mouth wash to prevent thrush, but she will take Pepcid to make sure she doesn’t get stomach upset. Depending on results that will come in next week, her next cath will be in 1 or 2 months.
Zayne looking smug: Right side heart cath (vein entry) are pretty quick these days. For the first time, Zayne opted out of pre-medicating, so she was fully awake until the laughing gas knocked her out. The cath is going through her neck which avoids the hated two hours of laying flat on her back. Since she wasn’t intubated and had less anesthesia, recovery was much quicker (Friday’s heart cath was only 7.5 hrs out of the day).
HopeKids sent Zayne to Casa Bonita to celebrate her new heart. She was thrilled and had a fantastic time watching the cliff divers, playing in the arcade, and enjoying all the restaurant has to offer. Masks were worn when there were crowds.
Riley, the cat, who can’t get a treat out of the cat treat container, turned on the bedroom touch lamp a few times around 4 am. I finally killed the flying insect that had him interested and he finally left the light alone. I could have unplugged the light, but that was more effort than just touching the lamp.
