Category Archives: Medication

Let’s Bake A Cake

Zayne was running around screaming “Let’s bake a cake”, because she hit 30 pounds on the scale.  She didn’t forget my promise 30Poundsthat we would celebrate when she hit 30 pounds.  So far, she has gained 2 pounds since transplant.  Appetite is up, but pickiness still prevails.

Zayne loves running around the house and riding her ‘house scooter’.  When her sternum restrictions are lifted (by the end of August) the scooter will be moved to the outdoors.  She has even put on her heart heroes cape that we received a couple of years ago HeartCapefrom Heart Heroes, and runs around the house.  When I bring her to the creek for a walk, she seems to limit her running and walks at a leisurely pace.  However, she is walking longer distances, and can go much farther than before.20150717_184821(0)

Due to a reduced immune system, Zayne is supposed to keep away from crowds and public areas, and not play in dirt.  Hopefully, walks along Clear Creek and wading in the water are acceptable diversions.  We have to exercise that new heart and get out of the house.  I’m struggling trying to find safe activities which do not include the house.  The other day, we took a drive into the mountains and Zayne got to enjoy a deserted playground in Silver Plume, CO.  20150715_132648I’m running after her with hand sanitizer and keep reminding her to not touch her face.  She ate 85% of a double chocolate Milano after playing (pre-transplant, she only nibbled).

Today, was a very bad and a very good day for the medication.  Zayne has been having a really difficult time taking one of her anti-rejection medications, cyclosporin.  It tastes horrible and can be difficult to keep down.  Trying to convince her to take a medication 2x (and sometimes 3x) every day that makes her gag is difficult.  Due to the medication schedule and early morning hospital appointments, Zayne is not getting enough sleep during the night.  I had to wake her up before 8 this morning to take her meds, and she was not happy.  I bargained with her that she only needed to take 2 of her 6 syringes, and got her to drink 3 oz of Pediasure to fill her stomach.  Unfortunately, the cyclosporin caused gagging, burning throat, stomach pain,20150715_131232 and a mess in my bed.    Offering 30 minutes of video was the only way I could get her to take her replacement dose as requested by the transplant coordinator.  I came up with the good part for medication dosing by having Zayne hold the Hershey’s Syrup in her mouth while I release the syringe of cyclosporin.  So far, 2 doses have resulted in no gagging.  This is great, since Zayne must continue to take this medication.

2 Comments

Filed under Medication, Post-Transplant